The GRSBA Mission
We are a not-for-profit organization devised of individuals with Spina Bifida, family and other community members who work together to promote the physical, emotional and social well-being of people with Spina Bifida and other disabilities.
We provide presentations, programs and social events and services in the greater Rochester New York region.
We work to promote outreach, education and advocacy.
What is Spina Bifida?
Welcome to our resource on Spina Bifida, a starting point for understanding this condition. Here, you’ll find an overview of Spina Bifida, its basic implications, and initial guidance for patients and families.
Upcoming Events
2025 Rock ‘N’ Bowl
June 21, 2025 1:00 pm
Are you ready to Rock 'N' Bowl? That's right, GRSBA's annual family and friends bowling part is Saturday, June 21st from 1-3PM! Join us at AMF Fairview Lanes (1407 Fairport...
GRSBA 2025 Summer Picnic
August 16, 2025 12:00 pm
SAVE THE DATE!!! GRSBA's Annual Summer Picnic has been scheduled for August 16, 2025! Exact time and location TBD. Check back here or on our FB page for more details!
GRSBA’s 3rd Annual Night of Comedy!
October 2, 2025 6:00 pm
GRSBA presents the 3rd Annual Night of Comedy featuring Comedian Jonnie W. with Special Guest Dan Viola and Emcee Dan Kulp. When: Thursday, October 2, 2025 Where: Strathallan Rochester...
Our Latest Posts
Due to the fact that our membership database was lost, we are making a valiant attempt to reestablish our membership...
Greater Rochester Spina Bifida Association ANNUAL MEETING AND ELECTIONS & SOCIAL GATHERING Complimentary Appetizers and Open Bar & Exciting...
GRSBA General Member Meeting and BOD Elections DATE: Wednesday, February 16, 2022 MEETING: 7:00 pm – 8:30 pm PLACE:...