I thought that I would use this space to update/inform people about folic acid and the relationship to the development of spina bifida and why it remains an issue for families today. The neural tube (brain and spinal cord) closes Continue reading
Corey, Luke, Scott and I would like to thank the Spina Bifida Association for donating your portion for the Spokes for Spina Bifida event back to the Rochester Rookies to help pay for the expenses at National competition. The money was used Continue reading
So there’s this day, it’s kind of a big day. It happens once a year and you get to give the people who need love and care a gift. That day is December 1. This year, show how much you Continue reading
Please join us on Tuesday, December 1st from 6-9PM at ALEX AND ANI in Victor (236 High Street Extension, Victor, New York 14564) for a CHARMED BY CHARITY® SOIREE! Sip on refreshments, snack on small bites and get some of Continue reading
Our bowling event was a great success, as shown below, families had fun together!
Contemporary Pediatrics has posted an article on the 10 things physicians should know about Spina Bifida, click the link to read more: http://contemporarypediatrics.modernmedicine.com/contemporary-pediatrics/news/spina-bifida-top-10-things-physicians-know
***Monday, September 28th – Sunday, October 4th.*** Come on out and help support a wonderful cause! Visit Yolickity Frozen Yogurt Bar in Henrietta, Webster, Brighton or Greece from 9/28 – 10/4 and give the cashier the code words…. “Spina Bifida” Continue reading
GRSBA BOARD OF DIRECTORS MEETING WHEN: MONDAY, SEPTEMBER 28, 2015 WHERE: AL SIGL CENTER, 1000 ELMWOOD AVENUE, ROCHESTER, NEW YORK 14620 (Justin Vigdor Conference Room) Door #1 START TIME: 6:00 PM Open to the public. Hope to see you there!
Greater Rochester Spina Bifida Assoc. Annual Picnic Sunday, August 23, 2015 Noon – 4:00 PM Veterans Memorial Park Calkins Road, Henrietta New York (Stevens Pavilion) RSVP To: Holli Rissberger – firstname.lastname@example.org ALSO, please bring a small dish or snack to pass FUN – FRIENDS – Continue reading