Greater Rochester Spina Bifida Association

Greater Rochester Spina Bifida Association

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Category Archives: News

The March 2022 Monthly Update: Rebuilding the GRSBA

Posted on April 4, 2022 by Robin Smith

Please visit the link below to read about all of the work our newly elected Board of Directors have been doing this month to rebuild GRSBA! The March 2022 Monthly Update: Rebuilding the GRSBA

Posted in Board Members, News

2022 GRSBA Membership Enrollment Form

Posted on January 26, 2022 by Robin Smith

Due to the fact that our membership database was lost, we are making a valiant attempt to reestablish our membership listing. In order to vote in our upcoming elections, you must be a registered member.  Please complete the quick and Continue reading →

Posted in Board Members, Events, News

GRSBA Member Meeting Summary – 12/16/2021

Posted on December 28, 2021 by Robin Smith

GRSBA Member Meeting Summary December 16, 2021 Opening: A meeting consisting of GRSBA members was held 7:00 pm – 8:00 pm on December 16, 2021 at “The Town Hall Meeting Room”, 1225 Jefferson Road, Rochester, NY 14623. The option for members Continue reading →

Posted in Board Members, Events, News

ROC the Day with GRSBA

Posted on November 27, 2017 by Robin Smith

We’re entering “the most wonderful time of the year,” right? Why not start it off right by giving to GRSBA on ROC the Day and helping United Way serve our community! Visit www.ROCtheDay.org/GRSBA on #GivingTuesday to truly make a difference.

Posted in Board Members, Events, Fundraiser, News

Board Meeting Tonight! Join Us!

Posted on November 27, 2017 by Robin Smith

*** Sorry for the short notice – please see below details regarding tonight’s Board Meeting. These meetings are open to the public and we’d love to see you there!! *** GREATER ROCHESTER SPINA BIFIDA ASSOC. BOARD OF DIRECTORS MEETING DATE Continue reading →

Posted in Board Members, Events, News

Remembering Past President Nancy Gullen

Posted on June 27, 2016 by Robin Smith

This past week the Greater Rochester Spina Bifida Association lost one of their most precious past Chairs – Nancy (Anita) Gullen. Nancy and her husband, Mart, Co-Chaired GRSBA for many years and brought a wealth of talent, class and empathy Continue reading →

Posted in Board Members, News

Spotlight on the Burtner Family

Posted on February 22, 2016 by admin

We are a close knit family of four, dad-Brandon, he enjoys playing guitar in our Church’s worship band, being outdoors, and playing with his kiddos. Mom-Sandy, enjoys running, reading-on a Jane Austin kick right now 😉 and I love to Continue reading →

Posted in News

Folic acid

Posted on February 1, 2016 by admin

I thought that I would use this space to update/inform people about folic acid and the relationship to the development of spina bifida and why it remains an issue for families today. The neural tube (brain and spinal cord) closes Continue reading →

Posted in News | Tagged folic acid, kirch, news

GRSBA Donation Helps Rookies to the Nationals and to Medals!

Posted on December 16, 2015 by admin

Corey, Luke, Scott and I would like to thank the Spina Bifida Association for donating your portion for the Spokes for Spina Bifida event back to the Rochester Rookies to help pay for the expenses at National competition. The money was used Continue reading →

Posted in News

Frozen Yogurt Fundraiser!!

Posted on September 28, 2015 by Robin Smith

***Monday, September 28th – Sunday, October 4th.*** Come on out and help support a wonderful cause!  Visit Yolickity Frozen Yogurt Bar in Henrietta, Webster, Brighton or Greece from 9/28 – 10/4 and give the cashier the code words…. “Spina Bifida” Continue reading →

Posted in Events, Fundraiser, News

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  • OFFICIAL MEETING NOTICE – Annual Meeting and Elections
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