The March 2022 Monthly Update: Rebuilding the GRSBA
Please visit the link below to read about all of the work our newly elected Board of Directors have been doing this month to rebuild GRSBA! The March 2022 Monthly Update: Rebuilding the GRSBA
Category Archives: News
2022 GRSBA Membership Enrollment Form
Due to the fact that our membership database was lost, we are making a valiant attempt to reestablish our membership listing. In order to vote in our upcoming elections, you must be a registered member. Please complete the quick and Continue reading
GRSBA Member Meeting Summary – 12/16/2021
GRSBA Member Meeting Summary December 16, 2021 Opening: A meeting consisting of GRSBA members was held 7:00 pm – 8:00 pm on December 16, 2021 at “The Town Hall Meeting Room”, 1225 Jefferson Road, Rochester, NY 14623. The option for members Continue reading
ROC the Day with GRSBA
We’re entering “the most wonderful time of the year,” right? Why not start it off right by giving to GRSBA on ROC the Day and helping United Way serve our community! Visit www.ROCtheDay.org/GRSBA on #GivingTuesday to truly make a difference.
Board Meeting Tonight! Join Us!
*** Sorry for the short notice – please see below details regarding tonight’s Board Meeting. These meetings are open to the public and we’d love to see you there!! *** GREATER ROCHESTER SPINA BIFIDA ASSOC. BOARD OF DIRECTORS MEETING DATE Continue reading
Remembering Past President Nancy Gullen
This past week the Greater Rochester Spina Bifida Association lost one of their most precious past Chairs – Nancy (Anita) Gullen. Nancy and her husband, Mart, Co-Chaired GRSBA for many years and brought a wealth of talent, class and empathy Continue reading
Spotlight on the Burtner Family
We are a close knit family of four, dad-Brandon, he enjoys playing guitar in our Church’s worship band, being outdoors, and playing with his kiddos. Mom-Sandy, enjoys running, reading-on a Jane Austin kick right now 😉 and I love to Continue reading
Folic acid
I thought that I would use this space to update/inform people about folic acid and the relationship to the development of spina bifida and why it remains an issue for families today. The neural tube (brain and spinal cord) closes Continue reading
GRSBA Donation Helps Rookies to the Nationals and to Medals!
Corey, Luke, Scott and I would like to thank the Spina Bifida Association for donating your portion for the Spokes for Spina Bifida event back to the Rochester Rookies to help pay for the expenses at National competition. The money was used Continue reading
Frozen Yogurt Fundraiser!!
***Monday, September 28th – Sunday, October 4th.*** Come on out and help support a wonderful cause! Visit Yolickity Frozen Yogurt Bar in Henrietta, Webster, Brighton or Greece from 9/28 – 10/4 and give the cashier the code words…. “Spina Bifida” Continue reading