We’re entering “the most wonderful time of the year,” right? Why not start it off right by giving to GRSBA on ROC the Day and helping United Way serve our community! Visit www.ROCtheDay.org/GRSBA on #GivingTuesday to truly make a difference.
*** Sorry for the short notice – please see below details regarding tonight’s Board Meeting. These meetings are open to the public and we’d love to see you there!! *** GREATER ROCHESTER SPINA BIFIDA ASSOC. BOARD OF DIRECTORS MEETING DATE Continue reading
This past week the Greater Rochester Spina Bifida Association lost one of their most precious past Chairs – Nancy (Anita) Gullen. Nancy and her husband, Mart, Co-Chaired GRSBA for many years and brought a wealth of talent, class and empathy Continue reading
We are a close knit family of four, dad-Brandon, he enjoys playing guitar in our Church’s worship band, being outdoors, and playing with his kiddos. Mom-Sandy, enjoys running, reading-on a Jane Austin kick right now 😉 and I love to Continue reading
I thought that I would use this space to update/inform people about folic acid and the relationship to the development of spina bifida and why it remains an issue for families today. The neural tube (brain and spinal cord) closes Continue reading
Corey, Luke, Scott and I would like to thank the Spina Bifida Association for donating your portion for the Spokes for Spina Bifida event back to the Rochester Rookies to help pay for the expenses at National competition. The money was used Continue reading
***Monday, September 28th – Sunday, October 4th.*** Come on out and help support a wonderful cause! Visit Yolickity Frozen Yogurt Bar in Henrietta, Webster, Brighton or Greece from 9/28 – 10/4 and give the cashier the code words…. “Spina Bifida” Continue reading
GRSBA BOARD OF DIRECTORS MEETING WHEN: MONDAY, SEPTEMBER 28, 2015 WHERE: AL SIGL CENTER, 1000 ELMWOOD AVENUE, ROCHESTER, NEW YORK 14620 (Justin Vigdor Conference Room) Door #1 START TIME: 6:00 PM Open to the public. Hope to see you there!
Hi All, We recently updated our scholarship form and our non-reimbursable medical expenses form. Both documents can be found on the documents page
Linda Burdett, an executive function coach, recently held a conference regarding Non Verbal Learning Disabilities (NVLD), and its prevalence and impact on those with Spina Bifida. While many people with Spina Bifida have average intelligence, they are more likely to Continue reading