Greater Rochester Spina Bifida Association

The GRSBA Mission

We are a not-for-profit organization devised of individuals with Spina Bifida, family and other community members who work together to promote the physical, emotional and social well-being of people with Spina Bifida and other disabilities.

We provide presentations, programs and social events and services in the greater Rochester New York region.

We work to promote outreach, education and advocacy.

What is Spina Bifida?

Welcome to our resource on Spina Bifida, a starting point for understanding this condition. Here, you’ll find an overview of Spina Bifida, its basic implications, and initial guidance for patients and families.

Upcoming Events

Join Us for a Night of Comedy!

October 11, 2024 6:30 pm

  Come join us for a night of comedy and fundraising with Greater Rochester Spina Bifida Association! This year our host will be Dan Kulp with comedian Joey I.L.O. Our...

Learn More

Our Latest Posts

Please visit the link below to read about all of the work our newly elected Board of Directors have been...

The Board of Directors (BOD) was elected to a two-year term during the last Annual Membership Meeting and Election. This...

Reminder!! Our Annual Meeting and Elections & Social Gathering is coming up on February 16th! We hope to see you...

PLEASE, PLEASE, PLEASE, consider running for a BOD position for this upcoming term.  Attached is an excerpt of the GRSBA Bylaws,...