The GRSBA Mission
We are a not-for-profit organization devised of individuals with Spina Bifida, family and other community members who work together to promote the physical, emotional and social well-being of people with Spina Bifida and other disabilities.
We provide presentations, programs and social events and services in the greater Rochester New York region.
We work to promote outreach, education and advocacy.
What is Spina Bifida?
Welcome to our resource on Spina Bifida, a starting point for understanding this condition. Here, you’ll find an overview of Spina Bifida, its basic implications, and initial guidance for patients and families.
Upcoming Events
GRSBA Annual Picnic – August 1, 2026
August 1, 2026 12:00 pm
Please join us for our Annual Picnic on Saturday, August 1st from 12-4pm at Tinker Park! Address: 1525 Calkins Road, Pittsford, NY There will be face painting, crafts and yard...
GRSBA’s 4th Annual Night of Comedy!
October 8, 2026 6:00 pm
GRSBA presents the 4th Annual Night of Comedy featuring Comedian Rik Roberts with Special Guest Dan Brian Smith and Emcee Dan Kulp. When: Thursday, October 8, 2026 Where: Strathallan...
Our Latest Posts
Due to the fact that our membership database was lost, we are making a valiant attempt to reestablish our membership...
Greater Rochester Spina Bifida Association ANNUAL MEETING AND ELECTIONS & SOCIAL GATHERING Complimentary Appetizers and Open Bar & Exciting...
GRSBA General Member Meeting and BOD Elections DATE: Wednesday, February 16, 2022 MEETING: 7:00 pm – 8:30 pm PLACE:...