The Board of Directors (BOD) was elected to a two-year term during the last Annual Membership Meeting and Election. This was because the organization had lost its Non-Profit Status, and all terms for the previous officers had expired. To establish Continue reading →

Reminder!! Our Annual Meeting and Elections & Social Gathering is coming up on February 16th! We hope to see you there! Link to FB Event:  https://fb.me/e/295uDZ4o4

PLEASE, PLEASE, PLEASE, consider running for a BOD position for this upcoming term.  Attached is an excerpt of the GRSBA Bylaws, which outline the responsibilities of the Board of Directors and Executive Committee. (The full version of the Bylaws of Continue reading →

As GRSBA moves into 2019 we have some big challenges before us. Steve Niles, the current President of the Board of Directors, has announced that he is stepping down from his position. According to our By-Laws, this means that Sarah Continue reading →

Our Pool Party is coming up soon – have you RSVP’d yet??    We hope to see you there!!! As a reminder, these are the swimwear guidelines that Perinton Community Center has:

*** SAVE THE DATE! *** GRSBA Annual Pool Party! Sunday, March 10, 2019 1-5PM Perinton Community Center Fun for Families and Individuals with Spina Bifida More Details to Come!

The Greater Rochester Spina Bifida Association is deeply saddened to hear of the passing of former GRSBA President Doug Pease. Doug was deeply committed to making a difference in the lives of others and there are so many of the families within Continue reading →

GREATER ROCHESTER SPINA BIFIDA ASSOC. EC & BOARD OF DIRECTORS MEETING WEDNESDAY MAY 9, 2018 Executive Committee 6:30 PM Board of Directors 7:00 PM Conference Room “Justin Vigdor” (Our usual room) RSVP To: Jo Ann Armstrong at: jarmst4459@aol.com

Our next Board of Directors Meeting will take place on Tuesday, May 23rd.  More details to follow. At this meeting we will be electing new Board Members.  The following positions are available this year.  Each position has a 2 year Continue reading →

There is still time to submit an application for the Colleen Gullen Scholarship Fund! The Executive Committee has decided to extend the application deadline to: APRIL 30, 2017   Please visit the Documents section of the website to print out a Continue reading →